Separating Conjoined Twins: Why Some Surgeries Are Possible and Others Aren't

Separating Conjoined Twins: Why Some Surgeries Are Possible and Others Aren't

The moment a doctor sees two heartbeats on an ultrasound where there should only be one, the world shifts. It's rare. We are talking about one in every 50,000 to 200,000 births. When those babies are physically connected, the first question every parent—and honestly, every surgeon—asks is: what type of conjoined twins can be separated?

It isn't a simple yes or no. Separation surgery is a high-stakes chess match against anatomy. Sometimes, the path is clear. Other times, the risks are just too high because the two lives are so deeply entwined that they are, biologically speaking, one unit. Surgeons like Dr. James Goodrich, who became legendary for his work at Montefiore Medical Center, spent years obsessing over these specific physical maps to find a way to give these kids independent lives.

Success isn't just about surviving the operating table. It's about what happens five, ten, or fifty years later.


The Big Factor: What Are They Sharing?

The "separation potential" of conjoined twins usually comes down to the plumbing. If you share a liver, you’re in luck. The liver is a regenerative powerhouse. Surgeons can split it in two, and it’ll grow back for both kids. But if you share a heart? That's where things get incredibly complicated—and often tragic.

Basically, there are about a dozen different ways twins can be joined. Doctors categorize them using the Greek suffix "-pagus," which means "fastened."

Omphalopagus Twins: The Most Separable

These twins are joined at the abdomen. They often share a liver, maybe some part of the digestive tract, but they usually have two distinct hearts. Because of this, Omphalopagus twins have some of the highest success rates for separation. Think of the famous 2017 case of Erika and Eva Sandoval. They shared a digestive system, a uterus, and a liver, but they had separate hearts and lungs. After an 18-hour marathon surgery at Stanford Children’s Health, they were successfully separated. It’s hard, but the anatomical "blueprint" allows for it.

Thoracopagus Twins: The Heart of the Matter

This is the most common type, making up about 35% to 40% of cases. They are joined at the chest. Here is the deal: if they share a single, fused heart, separation is almost always impossible. You can't just cut a heart in half. Even with modern 3D printing and advanced cardiac mapping, if the internal chambers are shared, one twin would usually have to be sacrificed to save the other—an ethical and medical nightmare that most surgical teams won't touch. However, if they only share the chest wall or the pericardium (the sac around the heart), the outlook changes completely.


When the Brain is Involved: Craniopagus Twins

Craniopagus twins are joined at the head. This is the rarest form, occurring in only about 2% of cases. For decades, this was seen as the "final frontier" of pediatric surgery.

Why? Because the brain isn't just a lump of tissue; it's a massive network of veins and arteries. In many craniopagus cases, the twins share a superior sagittal sinus—the large vein that drains blood from the brain. If you cut that, the brain swells, and the patient dies or suffers massive strokes.

The "Goodrich Method"

Dr. James Goodrich revolutionized this. Instead of one massive 50-hour surgery, he pioneered a staged approach. He’d do several smaller surgeries over months. He’d separate a little bit of the connection, let the kids heal, and let their bodies "re-route" their own blood flow. Then he'd go back in. This is exactly how Jadon and Anias McDonald were separated in 2016. It took 27 hours for the final stage, but it worked.

Wait, it's not always a win. Even with success, these kids often face years of physical therapy or developmental delays. The brain is sensitive. You’re messing with the very hardware of who they are.

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The Physical Classification Breakdown

If you're looking for the technical "who's who" of separation potential, it’s mostly about the site of the union.

  • Ischiopagus (Bottom-to-bottom): Joined at the pelvis. They often share a lower gastrointestinal tract and genitourinary organs. These are tricky because of the reconstructive surgery needed for the hips and bowels, but separation is frequently successful.
  • Pygopagus (Back-to-back): Joined at the base of the spine and the buttocks. They might share a rectum or the end of the spinal cord. These separations are often successful because they rarely share vital organs like the heart or liver.
  • Parapagus (Side-by-side): These twins are joined at the torso and often share limbs. This is where it gets tough. If they share a heart (dicephalic parapagus), separation is rarely an option.

The Invisible Hurdle: Ethics and Quality of Life

Just because we can separate doesn't always mean we should. This is the part people don't like to talk about. Surgeons have to look at the "predicted outcome."

If separation leaves both children as "total care" patients—meaning they can't breathe on their own, eat on their own, or interact with the world—is that a success? Some twins, like the famous Abby and Brittany Hensel, were never separated. They are dicephalic parapagus twins, meaning they share a single body with two heads. Separation would have been fatal for one or both, or left them with extreme disabilities. Instead, they’ve lived a full life, went to college, and became teachers.

Honestly, the medical community is moving away from the "separate at all costs" mentality. Now, it's about the "burden of surgery." If the twins are stable and healthy while joined, and separation would be life-threatening, many families choose to leave things as they are.


How Technology is Changing the Odds

We aren't just winging it anymore. Before a surgeon even picks up a scalpel, they’ve already performed the surgery a dozen times in a virtual space.

  1. 3D Printing: Doctors now print exact 1:1 scale models of the twins' shared organs and bone structures. They can hold the shared liver in their hands and see exactly where the major vessels are.
  2. Virtual Reality (VR): Teams in different countries (like the UK and Brazil) have used VR headsets to "walk through" a shared brain together. In 2022, Brazilian twins Arthur and Bernardo Lima were separated after almost 30 hours in the OR, with surgeons in London guiding the process via VR.
  3. Tissue Expanders: To close the massive gaps left after separation, doctors insert balloons under the skin months in advance. They slowly fill them with saline to stretch the skin, ensuring there is enough "slack" to cover the surgical sites.

Moving Toward a Decision

If you are following a case or looking into this for medical research, the timeline is everything. Most separations happen between 6 and 12 months of age. This gives the babies time to grow strong enough for anesthesia but happens before they are old enough to have major developmental memories of being joined.

Key Insights for Evaluating Separation Potential:

  • Imaging is king: You need high-resolution MRIs and CT angiograms. If the blood vessels are "interdigitated" (woven together like fingers), the risk of stroke or hemorrhage is massive.
  • The "One Heart" Rule: Sharing a single, well-formed heart is almost always a contraindication for separation.
  • Shared Liver is okay: As mentioned, the liver's ability to regrow makes it the "easiest" major organ to divide.
  • Surgical Team Depth: You don't just need a surgeon. You need a small army: plastic surgeons, neurosurgeons, urologists, cardiologists, and specialized anesthesiologists who know how to manage two bodies that share a circulatory system.

Separation is a miracle of modern engineering, but it’s also a gamble. Each case is a custom job. There is no "standard" procedure because no two sets of conjoined twins are joined in exactly the same way. The focus remains on the individual anatomy and the ethical weight of the outcome.

Next Steps for Understanding Conjoined Twin Outcomes:

To get a clearer picture of a specific case, look into the "Bridge" or "Staged" surgical protocols popularized by the late Dr. James Goodrich. Researching the Sandoval twins or the McDonald twins provides the best modern examples of how abdominal and cranial connections are navigated by surgical teams today. For those interested in the ethical side, studying the life of the Hensel twins offers a perspective on why some "inseparable" configurations can still lead to a high quality of life without surgical intervention.