If you’ve spent any time on TikTok or Instagram lately, you’ve probably seen her face. Zuza Beine was that girl. The one who could make a "Get Ready With Me" video while hooked up to an IV and somehow make you feel like your own problems weren't quite as heavy as you thought.
But then the updates stopped.
People started asking the question that nobody wants to ask about a teenager: is Zuza Beine still alive? It's heavy. Honestly, it's the kind of news that hits you in the gut, especially if you followed her through the five times she beat cancer. She wasn't just another influencer trying to sell you a moisturizer or a lifestyle. She was real.
The heartbreaking truth about Zuza Beine
I'll give it to you straight. No, Zuza Beine is no longer with us.
She passed away on the morning of Monday, September 22, 2025. She was only 14 years old.
Her family broke the news the following day on her Instagram, and the internet basically came to a standstill. It’s rare for a creator to have that kind of impact, but Zuza had been fighting for a long, long time. We’re talking about a kid who was diagnosed with acute myeloid leukemia (AML) when she was only three and a half.
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Think about that for a second.
Most kids that age are just learning to ride a bike. Zuza was starting a decade-long war with her own blood. She went through three bone marrow transplants. She survived relapses five different times.
What happened in her final days?
The most surreal part of following Zuza was how she handled the end. She didn't hide the ugly stuff. A few days before she died, she posted a video where she was crying, admiting she was in so much pain she couldn't even walk.
"I'm living with pain constantly on a daily basis," she told her followers. "It's not always pretty."
Yet, her very last video—the one she posted just 24 hours before she passed—wasn't about the pain. It was a "tiny things" appreciation post. She talked about being grateful for the taste of good food. She talked about hairstyles.
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Her family later said that her "transitioning" happened while she was listening to music by Noah Kahan. If you know her content, you know she was a massive fan. Kahan himself even posted a tribute, saying he was "absolutely heartbroken" and remembered singing with her backstage.
Why her legacy at Glow House matters
Zuza was a key member of Glow House, a collective for young creators. But she wasn't there just to be "famous." She used that platform to pull back the curtain on what childhood cancer actually looks like.
She'd show the scars. She'd show the hair loss from chemo.
But then she’d show herself putting on lip gloss or hanging out with her friend Samara. It was a weird, beautiful mix of "I am a normal teen" and "I am fighting for my life."
A quick look at the numbers of her impact:
- 1.8 million+ followers on Instagram.
- 1.7 million+ followers on TikTok.
- 11 years spent battling leukemia.
- 3 bone marrow transplants endured.
The "Glow House" community's reaction
When the news broke, the rest of the Glow House creators were wrecked. Samara, who was basically Zuza's best friend, posted a video that was hard to watch—just pure, raw grief.
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Other members like Kaili and PresLee shared similar sentiments. It wasn't just "internet friends" mourning; these kids lived and worked together. They saw the days when Zuza couldn't get out of bed.
The most "Zuza" thing about the whole situation? Her family asked that instead of flowers, people should donate to a GoFundMe for her aunt and cousins. Her uncle had died unexpectedly just a week before she did. Even at the end, the focus was on helping someone else.
What we can learn from Zuza’s journey
It sounds cliché to say a 14-year-old changed the world, but if you look at the comments on her final posts, it’s hard to argue. People from all over the globe—adults who have never been sick a day in their lives—were saying she taught them how to actually be grateful.
She didn't sugarcoat the "warrior" narrative. Sometimes she was just tired. Sometimes she was just a girl who wanted to be healthy.
That honesty is what made her 1.8 million followers feel like they actually knew her. She wasn't a "cancer patient" who happened to have social media. She was a creator who happened to have cancer.
Moving forward and honoring her memory
If you're looking for a way to process this or want to do something in her name, there are a few real ways to keep that "Zuza energy" alive:
- Support AML Research: Acute Myeloid Leukemia is notoriously aggressive. Organizations like the Leukemia & Lymphoma Society (LLS) are the ones actually funding the trials Zuza participated in.
- Join the Bone Marrow Registry: She had three transplants. Those only happen because strangers sign up for Be The Match (now NMDP). It’s a cheek swab. That’s it.
- Practice the "Tiny Things" Gratitude: It sounds corny until you realize a dying 14-year-old made it her final message. Notice the taste of your coffee. Notice that you can walk without pain today.
- Check out the Glow House tributes: If you want to see the impact she had on her peers, the videos from her friends provide a lot of context on who she was behind the scenes.
Zuza Beine didn't get the "normal, healthy" life she wanted. But she lived more in 14 years than most people do in 80. She showed us that you can be in the middle of a literal nightmare and still find something to be thankful for. That’s not just "influencing"—that’s a legacy.